Living with an ostomy: What to know, what to expect, and how to thrive

For many people, the idea of living with an ostomy can feel overwhelming. There’s often fear, uncertainty, and stigma attached to something that most people don’t openly talk about.

Whether you’re preparing for surgery or adjusting afterward, understanding what to expect can make all the difference.

What is an ostomy?

An ostomy is a surgically created opening on the abdomen that allows waste to leave the body when the digestive system needs to be removed or bypassed. A pouch, often called an ostomy pouch, is worn outside the body to collect waste.

Ostomies may be temporary or permanent and are commonly performed for conditions like colorectal cancer, inflammatory bowel disease, or other serious digestive issues.

Breaking the stigma

One of the biggest challenges people face isn’t the ostomy itself—it’s the perception around it.

The reality is that ostomy appliances are discreet, secure, odorless, waterproof, and designed to fit into daily life. Most people won’t even know you have one unless you choose to tell them.

People with ostomies work, travel, exercise, swim, enjoy intimacy, and maintain active social lives.

Tips for living with an ostomy

Adjusting takes time, but with the right approach—and the right support—it becomes part of your routine. At Englewood Health, a team of certified ostomy advanced practice nurses supports patients through every phase of care, helping them feel prepared, confident, and comfortable managing their ostomy.

Build a routine
Getting comfortable with changing and emptying your pouch is key. Finding a routine that works for you is important. Over time, this becomes second nature.
Find what works for you
There are different pouching systems and accessories, and it may take some trial and error to find the right fit. Ostomy nurses work closely with you to help select the right products and make adjustments along the way, so you feel confident in your day-to-day routine.
Pay attention to diet
Most people can return to a normal diet, but certain foods may affect gas, odor, or output. Keeping track of what works for your body can help you feel more in control. A registered dietitian can assist you with food choices that will work best for your type of ostomy.
Stay active
Exercise is not only possible—it’s encouraged. Walking, running, strength training, and even swimming can all be part of your routine once you’ve healed. An ostomy should not interfere with your daily activities, sports or hobbies.
Plan ahead
Carrying extra supplies when you’re out can give you peace of mind. A small kit in your bag or car goes a long way.
Take care of your skin
Healthy skin around the stoma is essential. Proper fitting and regular care help prevent irritation.
Give yourself time
Adjusting emotionally is just as important as adjusting physically and sometimes can seem more difficult. Give yourself time to adjust to having the ostomy. It’s normal for confidence to take time to rebuild—but it does.

You’re not alone

Connecting with others who have ostomies can be incredibly helpful. Whether through support groups, online communities, or your care team, having people who understand your experience makes all the difference.

“Having an ostomy, whether for a short period of time or permanently, can seem frightening and overwhelming at the beginning,” says Jill Cox, APN, wound, ostomy continence specialist. “However, help is available to guide and support you before and after surgery, and throughout your recovery to make your transition back to an active lifestyle a reality.”

Why a dedicated program matters

For younger patients facing colorectal cancer, the experience can feel especially isolating.

Englewood Health’s Young Onset Colorectal Cancer Program is designed to support these patients through every stage of care, including the unique challenges that may come with treatment. Not every patient undergoing treatment for colorectal cancer will need an ostomy, but for those who do, having the right education and support is essential.

“From a surgical standpoint, our goal is always to restore function and quality of life—but that doesn’t stop in the operating room,” says Michael Marco, MD, colorectal surgeon at Englewood Hospital and co-director of the Young Onset Colorectal Cancer Program at The Lefcourt Family Cancer Treatment and Wellness Center. “We spend a lot of time helping patients understand how to manage an ostomy day to day—what to expect, how to avoid complications, and how to feel comfortable getting back to work, social settings, and normal routines.”

Through a multidisciplinary team, patients receive ostomy education, ostomy support, and ongoing guidance tailored to their lifestyle and long-term goals.

“We recognize that being diagnosed with colorectal cancer at a young age brings a unique set of challenges, especially when it involves adjusting to life with an ostomy,” says Minaxi P. Jhawer, MD, chief of hematology/oncology and co-director of the program.” As more young adults are diagnosed with colorectal cancer, it’s critical that we support not just their treatment, but how they live during and after it. That means providing coordinated care, education, and long-term support so patients can move forward with confidence.”

Learn more about the Young Onset Colorectal Cancer Program

Posted on May 4, 2026